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How COVID-19 and The Vaccines Impact RP Patients’ Vision

How COVID-19 and The Vaccines Impact RP Patients’ Vision 1, COVID-19 damages the vision and causes irreversible damage to the optic nerves If a patient were in respiratory distress long enough, theoretically poor perfusion and oxygen deprivation could lead to possible damage to metabolically active tissues, such as the optic nerve or retina, but this has yet to be reported in COVID-19 related cases. In this instance, eye damage would be caused by decreased oxygen, rather than the virus itself. Additionally, it has been ... Read more

Drugs Should Be Avoided By RP Patients

https://youtu.be/m2lpzUY2L7Y 1. Erectile dysfunction drugs ViagraSildenafil, the active ingredient in Viagra, can cause temporary vision changes, including blurred vision, sensitivity to light, reduced eyesight and changes to color perception. These side effects disappeared within a few days, however, it’s not known how exactly will Viagra affect RP patients’ vision by long term use. It’s worth taking into consideration if RP patients use it for the long term. 2. AccutaneUsed to treat acne, it has been reported to worsen night vision, ERG response, dark ... Read more

Study outlines use of intravitreal injection of allogeneic human retinal progenitor cells to treat RP

Study outlines use of intravitreal injection of allogeneic human retinal progenitor cells to treat RP   A phase 2B study was conducted of the efficacy of the regenerative medicine advanced therapy (RMAT) -designated intravitreal injection of allogeneic human retinal progenitor cells (hRPCs) (jCell, jCyte Inc.) to treat retinitis pigmentosa (RP).     The study showed that in the high-dose patient group, there was a significant correlation between all visual function changes measured over the 12-month study and the optical coherence tomography (OCT) measurement of the central ... Read more

How is RP inherited?

To understand how RP is inherited, itís important to know a little more about genes and how they are passed from parent to child. Genes are bundled together on structures called chromosomes. Each cell in your body contains 23 pairs of chromosomes. One copy of each chromosome is passed by a parent at conception through egg and sperm cells. The X and Y chromosomes, known as sex chromosomes, determine whether a person is born female (XX) or male (XY). The 22 ... Read more

Testing for Retinitis Pigmentosa

You may wonder how RP is diagnosed, and why so many tests are needed to diagnose it properly. It is important to understand that a combination of many tests is often needed to separate RP from other retinal conditions. It is not uncommon for a person to visit several doctors before arriving at the diagnosis of RP. The tests also help your doctor understand how well your retina functions. Some of the tests are: Visual Acuity Testing — Visual acuity is another term for visual clarity. Most ... Read more

Living with RP in Childhood

If you are a parent of a child with RP, it is important that you talk with your child about the condition. It is natural for parents to protect a child from knowing about the disease, but most often the child is aware of it and needs parental guidance. Children may be scared by having many 16 medical appointments and may be unsure of what to expect in the future. Your child should be encouraged to talk with you if he or she has any changes in ... Read more

Some Facts About Retinitis Pigmentosa – RP Infographic

Some Facts About Retinitis Pigmentosa - RP Infographic Read more

What do blind people dream about?

What do blind people dream about? This article highlights the latest studies into the dreams of blind people, colorblind people, and black-and-white dreamers. Dreams of The Blind In 1999, dream researchers at the University of Hartford analyzed 372 dreams of 15 blind people. They found that both the congenitally blind and those who went blind before five years old did not have any visual dreams at all. That's because our dreams are made up of real world experiences and our innermost thoughts, anxieties and ... Read more

Tom Tarrant’s blog III: life with retinitis pigmentosa

How common are inherited retinal degenerations? Retinal degenerations affect men and women of all ages, races, cultures, and ethnic backgrounds. The broad range of retinal degenerative diseases affects at least six million Americans. Approximately 100,000 people in the United States are affected by retinitis pigmentosa or Usher syndrome, which is a variation of RP that also impairs hearing. It is estimated that one of every 80 people carries a recessive gene for RP, although this does not mean they or their children will ... Read more

Tom Tarrant’s blog II: life with retinitis pigmentosa

What is retinitis pigmentosa? Retinitis pigmentosa refers to a group of diseases that affect the retina. The retina is the delicate innermost layer of tissue that lines the eye. It contains layers of light receiving cells called photoreceptors that are connected to the brain by the optic nerve. If you think of the eye as a camera receiving images, then the retina is the film on which those images are recorded. Beneath the retina is the retinal pigmented epithelium (RIPE). The RIPE ... Read more